January 29, 2023

How to get an autism assessment

You need to be referred for an Autism Assessments – Which One is Right For You? by someone such as a GP or special educational needs coordinator (SENCO) staff at your child’s school.

You may have to wait a few months to get an appointment.

Find out how to get diagnosed

What you can do while you wait for an assessment

If you think you or your child need support at school, home or at work, you can start getting help before having an assessment.

You can:

  • ask a GP if the assessment team can suggest any support groups
  • ask a GP to refer your child for speech and language therapy
  • find a local support group using the National Autistic Society services directory
  • talk to teachers or special educational needs co-ordinator (SENCO) staff at your child’s school
  • speak to student support services at a college or university
  • speak to your manager or human resources at work
  • ask your local council for a needs assessment to see what support they can recommend

What happens during an autism assessment

You or your child may have 1 or more appointments with a team of different professionals.

For children

The assessment team may:

  • ask you about your child’s development, such as when they started talking
  • watch how you and your child interact, and how your child plays
  • read any reports sent by their GP, nursery, or school
  • ask about their medical history and do a physical examination

A member of the team may also visit your child’s school to watch them in class and at break time.

For adults

The assessment team may:

  • ask you to fill in a questionnaire about yourself and any problems you have
  • speak to someone who knew you as a child to find out about your childhood
  • read any reports from the GP about other health problems you may have

Getting the result

When the assessment is finished, you’ll be given a report saying what the team found.

You may be given it by the team or get it in the post.

The report will say:

  • if you or your child are autistic – it might say something like you “meet the criteria for autism spectrum diagnosis”
  • what you or your child might need help with – such as social interaction, communication, behaviors or sensitivity to lights, colors and sounds
  • what you or your child are good at

Sometimes the report can be hard to understand as it can be full of terms used by healthcare professionals.

Ask the assessment team if you need any help.

You and your child should also be offered another appointment a few weeks or months later, to talk to someone from the assessment team about the report.

Autism is a lifelong condition, so the report will be used throughout childhood and adulthood.

If you disagree with the result

When you get the information, you may:

  • be told you or your child are not autistic
  • be asked to wait until your child is a bit older to be assessed again, as the signs of autism may not be clear
  • be given a diagnosis you do not agree with, such as a learning disability

Ask the assessment team why they have made the diagnosis they have.

The assessment team might arrange for a second opinion from a different team.

If you still do not agree, you can ask the GP to refer you to another team for a second opinion. Or you can pay for another assessment by a professional you choose who works outside the NHS (privately).

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